Seize the Day 5k Run/Walk St. Louis

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Seize the Day logoOne in 20 children nationally is diagnosed with epilepsy. It is estimated to affect more than 200,000 people in Missouri & Kansas. Please help us win the fight for people in St. Louis with seizures by registering for the Seize the Day 5K Run/Walk – St. Louis.  We’re excited to have our profile at FirstGiving , where you can register for the 5k, set up your own FirstGiving profile, create a team or join an existing one, and invite others to join our event. 

Please go to www.firstgiving.com/efmk/SeizeTheDaySTL to get started.  Thank you for helping raise awareness about epilepsy and inspiring others to support the Foundation.

Kids Speak Up 2013 by Emily and Susan Ramza

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I was fortunate to attend Kids Speak Up, the Epilepsy Foundation Public Policy Institute in Washington, DC April 21-23. My mother joined me and I was one of 47 teens from around the country who came together to discuss ways to work to help improve the lives of the 2.2 million people with epilepsy in the United States.

Emily Ramza, James Townsend and Susan Ramza at the Capitol.

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Children with Epilepsy and Comorbid Conditions by Liu Lin Thio, MD, PhD

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Introduction

All parents want their children to have the highest quality of life possible. The same is true of parents who have a child living with a chronic condition such as epilepsy. Obviously, these children will attain this goal only if the symptoms of their condition are eliminated or at least minimized. However, the symptoms of comorbid conditions can have an equal or even greater impact on their quality of life. Comorbid conditions refer to conditions that co-occur more frequently than expected by chance. Unfortunately, children who live with epilepsy are at risk for having multiple comorbid conditions. Continue reading →

Executive Review by Darla Templeton

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Many of you have called the office and talked with Kathleen. Many of you have attended an epilepsy program where Kathleen presented. Many of you have received packets of information from Kathleen. Many of you have gathered at the office and discussed your child’s challenges and Kathleen was there for support. Many of you have read the newsletter that Kathleen edits. Many of you have attended a seminar that Kathleen has organized. Many of you have attended a professional advisory board meeting that Kathleen arranged. Many of you are nurses, medical interpreters, EMS personnel, police recruits, adult day care providers, childcare providers, school personnel, veterans, students and seniors. Continue reading →

You can help us win a $20,000 grant

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We are competing for a $20,000 grant from Monsanto’s Grow St. Louis program! Your votes from May 6 through May 19 will decide who will be awarded the grants. Vote everyday- every vote counts!

To vote:

  1. Click the link below or visit www.facebook.com/growstlouis
  2. Select ‘Okay’ to allow the Facebook application to access your Facebook information and verify your account.
  3. Click ‘like’ in the upper right-hand corner.
  4. Type “epilepsy” in the search bar.
  5. Click ‘vote.’
  6. Click ‘share’ to share you choice with your friends and family

You will only have to complete steps 2 and 3 the first time you vote.

Click Here to cast your daily vote on Facebook.

Thank you for your votes!

Thank You for a Wonderful 2013 V.E. Gala

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A few of the volunteers take a quick break to pose for the camera.

A few of the volunteers take a quick break to pose for the camera.

We are happy to announce a new record was set in both event attendance and money raised at the 2013 Victory Over Epilepsy Gala. Attendance increased by 50% and we raised over $32,000 for our education and advocacy programs. We are grateful to everyone who attended this event and look forward to making next year’s event bigger and better. Continue reading →

Epilepsy Symposium

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EFMK is proud to host an educational symposium targeted to physicians, nurses and community health advocates. Top medical and public health professionals will present on epilepsy diagnosis, treatment, psychosocial issues, co-occurring conditions, women’s issues, SUDEP and status epilepticus. Continue reading →