The Lou Fusz Automotive Network has graciously donated a new Toyota Corolla or a $16,000 credit towards a new automobile, foreign or domestic, from any of the network’s dealerships for the Lou Fusz-Epilepsy Foundation Car Raffle. Money raised from this raffle will help support people living with epilepsy in Kansas and Missouri. Continue reading
Author Archives: Jayme
Kids Speak Up 2013 by Emily and Susan Ramza
I was fortunate to attend Kids Speak Up, the Epilepsy Foundation Public Policy Institute in Washington, DC April 21-23. My mother joined me and I was one of 47 teens from around the country who came together to discuss ways to work to help improve the lives of the 2.2 million people with epilepsy in the United States.
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| Emily Ramza, James Townsend and Susan Ramza at the Capitol. |
Children with Epilepsy and Comorbid Conditions by Liu Lin Thio, MD, PhD
Introduction
All parents want their children to have the highest quality of life possible. The same is true of parents who have a child living with a chronic condition such as epilepsy. Obviously, these children will attain this goal only if the symptoms of their condition are eliminated or at least minimized. However, the symptoms of comorbid conditions can have an equal or even greater impact on their quality of life. Comorbid conditions refer to conditions that co-occur more frequently than expected by chance. Unfortunately, children who live with epilepsy are at risk for having multiple comorbid conditions. Continue reading
Executive Review by Darla Templeton
Many of you have called the office and talked with Kathleen. Many of you have attended an epilepsy program where Kathleen presented. Many of you have received packets of information from Kathleen. Many of you have gathered at the office and discussed your child’s challenges and Kathleen was there for support. Many of you have read the newsletter that Kathleen edits. Many of you have attended a seminar that Kathleen has organized. Many of you have attended a professional advisory board meeting that Kathleen arranged. Many of you are nurses, medical interpreters, EMS personnel, police recruits, adult day care providers, childcare providers, school personnel, veterans, students and seniors. Continue reading
You can help us win a $20,000 grant
We are competing for a $20,000 grant from Monsanto’s Grow St. Louis program! Your votes from May 6 through May 19 will decide who will be awarded the grants. Vote everyday- every vote counts!
To vote:
- Click the link below or visit www.facebook.com/growstlouis
- Select ‘Okay’ to allow the Facebook application to access your Facebook information and verify your account.
- Click ‘like’ in the upper right-hand corner.
- Type “epilepsy” in the search bar.
- Click ‘vote.’
- Click ‘share’ to share you choice with your friends and family
You will only have to complete steps 2 and 3 the first time you vote.
Click Here to cast your daily vote on Facebook.
Thank you for your votes!
Thank You for a Wonderful 2013 V.E. Gala
A few of the volunteers take a quick break to pose for the camera.
We are happy to announce a new record was set in both event attendance and money raised at the 2013 Victory Over Epilepsy Gala. Attendance increased by 50% and we raised over $32,000 for our education and advocacy programs. We are grateful to everyone who attended this event and look forward to making next year’s event bigger and better. Continue reading
Seize the Day 5k Run/Walk St. Louis
Featured
One in 20 children nationally is diagnosed with epilepsy. It is estimated to affect more than 200,000 people in Missouri & Kansas. Please help us win the fight for people in St. Louis with seizures by registering for the Seize the Day 5K Run/Walk – St. Louis. We’re excited to have our profile at FirstGiving , where you can register for the 5k, set up your own FirstGiving profile, create a team or join an existing one, and invite others to join our event.
Please go to www.firstgiving.com/efmk/SeizeTheDaySTL to get started. Thank you for helping raise awareness about epilepsy and inspiring others to support the Foundation.
Seize the Day 5k Run/Walk St. Louis
The St. Louis Seize the Day 5k Run/Walk is scheduled for June 22, 2013, in Kirkwood, MO.
Proceeds will benefit the Epilepsy Foundation of Missouri & Kansas.
The Epilepsy Foundation needs your support to continue the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.
One in 20 children nationally is diagnosed with epilepsy. It is estimated to affect more than 15,000 children and 10,000 adults in the St. Louis region. Please help us win the fight for people in St. Louis with seizures.
Register online at FirstGiving. Continue reading
EPILEPSY – A Symposium for Physicians, Nurses & Community Health Advocates
Epilepsy: A Symposium for Physician, Nurses & Community Health Advocates will take place on April 13, 2013 at the Capitol Plaza Hotel in Topeka, KS. Program materials, breakfast & lunch, and 6.5 continuing education credits (based on session attendance and event evaluation completion) are provided for free.
Get directions to the Capitol Plaza Hotel here.
Presentations:
Kansas Telehealth Services for Pediatric Epilepsy
Ms.Velasquez - Kansas Telehealth Services for Pediatric Epilepsy.pdf
Ms.Velasquez - Kansas Telehealth Services for Pediatric Epilepsy.pdf
Women's Issues, SUDEP, and Status Epilepticus
Dr. Hammond -Women Issues, SUDEP, and Status Epilepticus.pdf
Dr. Hammond -Women Issues, SUDEP, and Status Epilepticus.pdf
Please use the following instructions to print multiple PDF slides on a page.
- Open the PDF file and click on file
- Click on print and select your printer
- Set your print range on all pages and your subset on all pages in range
- Set your page handling on 1 copy
- Set your page scaling on multiple pages per sheet
- Set your page per sheet on 4 or 6 (preferably 6 per page because you will use less paper)
- Click ok to print
Program content:
- Epilepsy treatment
- Diagnosis
- Psychosocial issues
- Co-occurring conditions
- Resources
Individual tracks for Physicians, Nurses and Community Health Advocates
Symposium outcomes:
- Identify new medications and devices used to treat seizures.
- Implement comprehensive strategies for seizure management.
- Apply quality assessment evaluations to determine seizure types.
- Apply effective medication treatment.
- Determine appropriate milestones for referral.
- Identify resources for support, intervention and education.
Agenda:
7:30 – Registration, exhibits and continental breakfast
7:50 – Welcome & Introductions – Mimi Brown, MPH, HRSA, Project Access
8:00 Key Note Address – Public Health Dimensions of the Epilepsies: The context of the 2012 Institute of Medicine Report on Epilepsy – David Thurman, MD, MPH
8:30 – Overview – Nancy Hammond, M.D.
9:15 – Break
9:30 – Concurrent Break Out Sessions for physicians, nurses, community advocates
- Adults – Nancy Hammond, M.D.
- Nurses – Mary Ann Kavalir, CFNP, MSN
- Community Advocates – Teri Strong, PhD
- Pediatrics – Ahmed Abdelmoity, M.D.
11:45 – Break
12:00 – Lunch with special topic tables
- School Nurses
- Epilepsy in Adults
- Epilepsy in Pediatrics
- SUDEP, Status Epilepticus, etc
- Nursing Issues
- Psychosocial Issues
- Employment Issues
- Area Health Education Center
- Project Access
1:00 – Women’s Issues, Sudden Unexpected Death in Epilepsy, Status Epilepticus -Nancy Hammond, M.D.
1:45 – Q & A Panel Discussion- All Presenters
2:30 Evaluation
2:50 – Wrap Up
3:00 – Adjourn
Presented by:
Sponsored by:
Victory Over Epilepsy Gala
Certified Specialist of Wine Joyce Angelos Walsh explains the food and wine pairing for the evening.
We are happy to announce a new record was set in both event attendance and money raised at the 2013 Victory Over Epilepsy Gala. Attendance increased by 50% and we raised over $32,000 for our education and advocacy programs.
Thank you to the many wonderful people who made this event successful. A special thanks to the committee who worked for months to plan this event. The 2013 V.E. Gala committee members are Judy Wright, Susan Ramza, Vic Davis, Laurel Carr, Debbie Davis, Lindsey Serrano, Danielle Walk and Joyce Angelos Walsh.
We would like to acknowledge the wonderful work of Joyce Angelos Walsh and Susie Burns. Joyce is a Certified Specialist of Wine who developed the menu and wine pairings and presented during the meal. Susie and her staff at the Carriage club worked closely with us to plan and run the gala smoothly.
We are thankful for the many volunteers that helped run the event. From registration to the raffle to the wine pouring, our event would not have been possible without the volunteers graciously donating their time. Thanks especially to Vic Davis for presiding over our live auction again.
We are also grateful to our event sponsors and everyone who contributed to our complimentary reception and the auctions. Over 50 businesses and individuals donated to this year’s gala. To see a full list of who contributed to this year’s event, please visit our Partners page.
Committee members Judy Wright, Lindsey Serrano, and Susan Ramza with our Community Relations and Development Director Joni Miller.
And of course all who attended are appreciated. Your continued support in fighting epilepsy means the world to us and those we help through our programs.
Photography at the event was provided by Raye Pond. You can view more event photos at www.rayepondphotos.com. She will donate 50% of her proceeds from prints ordered back to the Foundation.
If you would like to join the 2014 V.E. Gala committee, want to be an event sponsor, or would like to contribute items for the auctions, please contact Joni Miller at 816-444-2800 or jmiller@efha.org